Satellite meetings
Satellite meeting 1 of 2:
Patient and Public Involvement (PPI) in Brain Disorders
Target group: Researchers, clinicians, health care personnel, and students interested in PPI activities
Time and place: 23.8.2022 at 17.15–19.15, Kuopio Music Centre
Welcome to the Patient and Public Involvement (PPI) in Brain Disorders satellite meeting, organized alongside the 9th Kuopio Alzheimer Symposium! This satellite event is targeted to those interested in the PPI activities in the ongoing research projects focused on personalized medicine applications in brain disorders. Presentations will be given by different research projects, patient organizations, and other stakeholders.
PROGRAMME
Chairs: Anna Mäki-Petäjä-Leinonen and Mikko Hiltunen, University of Eastern Finland, Kuopio, Finland
17.15 – 17.20 Welcome and introduction
Anna Mäki-Petäjä-Leinonen, University of Eastern Finland, Finland
17.20 – 17.30 Personalized medicine approach for novel microglia-associated genetic variants in Alzheimer’s disease (PMG-AD)
Mikko Hiltunen, University of Eastern Finland, Finland
17.30 – 17.40 Evaluating the contribution of biological age in the risk of progressing to dementia (PreADAPT)
Alfredo Ramirez, University of Cologne, Germany
17.40 – 17.50 Prediagnostic early synaptic disturbances in neurodegenerative diseases (SynaDeg)
Annakaisa Haapasalo, University of Eastern Finland, Finland
17.50 – 18.00 Patient Advisory board’s contribution to the EU-FINGERS project
Anna Rosenberg, Finnish Institute of Health and Welfare and Karolinska Institutet, Sweden
18.00 – 18.20 Organizing co-research teams: going beyond frameworks and guidelines.
Lessons from the practice
Caterina Bettin, University of Eastern Finland, Kuopio, Finland
18.20 – 18.40 Tips and advice on how to conduct PPI in the context of research projects related to dementia
Ana Diaz, Alzheimer Europe Project Officer, Luxembourg
18.40 – 18.45 Words from a representative of patient advisory board
Chris Roberts, UK, Chairman of the European Working Group of People with Dementia
18.45 – 18.50 Words from a representative of patient advisory board
Jayne Goodrick, Carer, advocate for people with dementia and their carers, UK
18.50 – 19.20 Round table discussion
19.20 – 19.25 Closing
Hilkka Soininen, University of Eastern Finland, Finland
Satellite meeting 2 of 2:
FinFTD network satellite meeting
Target group: Researchers, clinicians, health care personnel, and students interested in frontotemporal dementia (FTD) and related disorders.
Time and place: 24.8.2022 at 17.15–19.15, Kuopio Music Centre
Welcome to the FinFTD network satellite meeting, organized alongside the 9th Kuopio Alzheimer Symposium! This satellite event is targeted to those interested in the current and emerging research into clinical features, diagnostics, biomarkers, mechanisms, and therapeutic approaches related to FTD.
PROGRAMME
Chairs: Annakaisa Haapasalo and Eino Solje, University of Eastern Finland, Kuopio, Finland
17.15 – 17.20 Welcome and introduction
Annakaisa Haapasalo, University of Eastern Finland, Kuopio, Finland
17.20 – 17.40 Clinical early features and diagnostic challenges in FTD
Johanna Krüger, University of Oulu, Finland
17.40 – 18.00 Risk factors and co-morbidies of FTD
Eino Solje, University of Eastern Finland, Kuopio, Finland
18.00 – 18.25 Proteomic studies of FTD fluid biomarkers
Olivia Belbin, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain
18.25 – 18.45 Disease modeling using FTD patient-derived cells
Annakaisa Haapasalo, University of Eastern Finland, Kuopio, Finland
18.45 – 19.10 Emerging therapeutic interventions in FTD
Alberto Benussi, University of Brescia, Brescia, Italy
19.10 – 19.15 Closing
Eino Solje, University of Eastern Finland, Kuopio, Finland